bpold.co.uk Forum Index bpold.co.uk
For patients and families to discuss and support
 
 FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

A sibling with OB????!

 
Post new topic   Reply to topic    bpold.co.uk Forum Index -> Patients and Parents
View previous topic :: View next topic  

Do you have more than one family member with OB symptoms?
Yes, we have one other family member with OB symptoms
50%
 50%  [ 1 ]
No, we just have one family member with OB symptoms
50%
 50%  [ 1 ]
Yes, we have three or more family members with OB symptoms!
0%
 0%  [ 0 ]
Total Votes : 2

Author Message
Pinkhaus27



Joined: 12 Apr 2008
Posts: 39
Location: Glasgow

PostPosted: Sat Jul 14, 2012 9:05 am    Post subject: A sibling with OB????! Reply with quote

Hello, it's Lily's mum here. Lily has been great since moving to Australia. We are (very slowly) weaning her off daytime oxygen- she is now off for several hours each day.

In other family news, her little sister is now on oxygen at nights. Yes, we are not happy being merely rare, we seem to be going for SUPER rare!

Because of this, the doctors are looking into alternative diagnoses, like "Neuroendocrine Cell Hyperplasia of Infancy" (NEHI). They have ruled out ABC A3 surfactant deficiency. It could also be a milder form of Obliterative Bronchiolitis...

Anyone else have more than one child with OB symptoms?

Jill
Back to top
View user's profile Send private message
Display posts from previous:   
Post new topic   Reply to topic    bpold.co.uk Forum Index -> Patients and Parents All times are GMT
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum


Powered by phpBB © 2001, 2005 phpBB Group