British Paediatric Orphan Lung Diseases (BPOLD)

THE DISEASES | MONTHLY RETURNS | NEWS | CONTACTS | LINKS | PATIENT & PARENT FORUM

 

News

 

2017

BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK

2009

BPOLD is now funded by the Edinburgh University Research and Development Fund

2008

October

Thanks to Lynne Thompson, from Breathtakers (plus others) for helping the Patient/Parent forum to take off! However, some have been finding the registration process difficult.

See if this GUIDE to registration makes things easier.

July

New BreatheOn link added to 'Links'.

May

New Primary Ciliary Dyskinesia Family Support Group link added to 'Links'.

Try the new revised patient/parent forum.

April

BPOLD paper published in Pediatric Pulmonology. 'Establishment of a Web-based Registry for Rare (Orphan) Pediatric Lung Diseases in the United Kingdom'. Pediatr Pulmonol 2008; 43:451-456 and online at www.wiley.com (access rights may be required).

12th February

breatheon charity logobreatheon logo

Breathe On UK supports the families of children on long term ventilation and aims to give them all a better quality of life.

Breathe on UK is urgently looking for families of Long Term Ventilated children and also oxygen-dependent children from the ages of 0-18 years in order to fulfil the funding criteria.

We can fund urgent respite breaks and family holidays. If you or anyone you know has such a child please contact us by registering online at the following website. www.breatheon.org.uk or contact us via email at victoria@breatheon.org.uk or telephone 01258820274.

2007

12th December

Added new site to 'Links' - www.Breathtakers.co.uk for sufferers of Obliterative Bronchiolitis.

4th June

Problems with sending email following server company new installation of PHP affected MAIL function. Hopefully rectified but being monitored. Please let BPOLD know using the REGISTER page if you did not receive the June emailshot.

2006

15th October

The 'Monthly Returns' page has been updated with example images of the emails and web pages you will meet as you use the new system - see HERE

1st July

BPOLD is changing!

The BPOLD monthly returns process is to change on 1st June 2006. Instead of requiring user name and password access, registered BPOLD users will receive a monthly email prompt with links to record their returns data.

Nothing to report is recorded by a single-click while cases to report can be entered quickly with fuller details added when you have the time.

See the 'Monthly Returns' link above for more details.


News archive

2004 2005

 

 

 

 

BPOLD is funded by the Edinburgh University Research and Development Fund
BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK