British Paediatric Orphan Lung Diseases (BPOLD)

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Links

Site

Description

   
BreatheOn Uk National charity supporting all young people up to the age of 21 years who are either ventilated or technology dependent for over three months.    
British Thoracic Society      
Orphanet      
Breathtakers NEW a support group for sufferers of Obliterative Bronchiolitis    
The National electronic Library for Health - Respiratory      
Primary Ciliary Dyskinesia Family Support Group NEW      
European Organisation for Rare Diseases      
British Paediatric Respiratory Society      
Contact a Family For families with disabled children    
British Paediatric Surveillance Unit (RCPCH)    
National Organisation for Rare Disorders      
chILD Foundation Parental support group in USA for Interstitial Lung Disease    
Children Interstitial Lung Disease Yahoo Group Chat room for parents with Interstitial Lung Disease    
Little Leakers USA site for children with Lymphangiectasia    

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BPOLD is funded by the British Paediatric Respiratory Society & The Cohen Zimbler Family Trust