British Paediatric Orphan Lung Diseases (BPOLD)

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Links

Site

Description

   
ERS.net NEW      
European Lung Foundation NEW      
Child Lung Foundation      
BreatheOn Uk National charity supporting all young people up to the age of 21 years who are either ventilated or technology dependent for over three months.    
British Thoracic Society      
Orphanet      
Breathtakers a support group for sufferers of Obliterative Bronchiolitis    
The National electronic Library for Health - Respiratory      
Primary Ciliary Dyskinesia Family Support Group      
European Organisation for Rare Diseases      
British Paediatric Respiratory Society      
Contact a Family For families with disabled children    
British Paediatric Surveillance Unit (RCPCH)    
Have a breatherNEW A support group for oxygen-dependent children    
chILD Foundation Parental support group in USA for Interstitial Lung Disease    
Children Interstitial Lung Disease Yahoo Group Chat room for parents with Interstitial Lung Disease    
Little Leakers USA site for children with Lymphangiectasia    
Idiopathic Pulmonary Haemosiderosis USA site for children with Idiopathic Pulmonary Haemosiderosis complete with bulletin board    

* See Judge: Web sites for Health. The Judge project has developed guidelines for judging the quality of health information Web sites.

BPOLD is funded by the Edinburgh University Research and Development Fund
BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK