British Paediatric Orphan Lung Diseases (BPOLD)

Site	Description
BreatheOn	Uk National charity supporting all young people up to the age of 21 years who are either ventilated or technology dependent for over three months.
British Thoracic Society
Orphanet
Breathtakers NEW	a support group for sufferers of Obliterative Bronchiolitis
The National electronic Library for Health - Respiratory
Primary Ciliary Dyskinesia Family Support Group NEW
European Organisation for Rare Diseases
British Paediatric Respiratory Society
Contact a Family	For families with disabled children
British Paediatric Surveillance Unit	(RCPCH)
National Organisation for Rare Disorders
chILD Foundation	Parental support group in USA for Interstitial Lung Disease
Children Interstitial Lung Disease Yahoo Group	Chat room for parents with Interstitial Lung Disease
Little Leakers	USA site for children with Lymphangiectasia

* See Judge: Web sites for Health. The Judge project has developed guidelines for judging the quality of health information Web sites.

BPOLD is funded by the British Paediatric Respiratory Society & The Cohen Zimbler Family Trust