British Paediatric Orphan Lung Diseases (BPOLD)

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Orphan Paediatric Lung Conditions

Click on the disease you require more information about. You can download the Acrobat (.PDF) file of the text here or on the condition page.

 

Disease

Date updated

Acrobat .PDF

Parents and Young People with Orphan Lung Diseases in the UK

If you or your child has one of the conditions listed opposite, then you can request your doctor to register your child's details with BPOLD. This will help with current and future research into these conditions.
In order for your doctor to register your child's details you (and your child) will need to have read and understood the BPOLD information sheets, and you will need to sign a consent form agreeing to the registration when you next see your respiratory doctor. To help this process you may print off the information sheets and consent forms below and take them to your next clinic appointment with a Respiratory Paediatrician.

  Congenital Cystic Lung Lesions 01-11-2010
.PDF
  Congenital Central Hypoventilation Syndrome 03-11-2004
.PDF
  Interstitial Lung Disease 01-11-2010
.PDF
  Obliterative Bronchiolitis 01-11-2010
.PDF
  Pulmonary Alveolar Proteinosis 01-11-2010
.PDF
  Pulmonary Papillomatosis 01-11-2010
.PDF
  Bronchiectasis of Unknown Cause 01-11-2010
.PDF
  Pleural and Pulmonary Lymphangiectasia 01-11-2010
.PDF
  Idiopathic Pulmonary Haemosiderosis 30-11-2004
.PDF

 

BPOLD is funded by the Edinburgh University Research and Development Fund
BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK